Here is Josh Stanley speaking to the board.
Here we are with Josh
Basically this is what it all boils down to...Alepsia is the hemp product we need for our sick children. Hemp is legal in Utah if brought in from another country but not legal when brought in from another state. This is the law we are trying to change. I hope that makes sense? There will be more meetings this week continuing to try and change this law. Lots of prayers this happens soon! We don't have time to waste our children need the oil now...well we really needed it two years ago ;)
More on Leah!!!
She is doing pretty good! We always have rough days but it seems that we are on a track lately of having more good days than bad days. YAY!!!
Here is Leah having some good days! These are days where she is having only one or two seizures a day. Miracle days is what I call them!
Leah with her awesome brothers.
One day I was watching a video on my iphone of a girl who has cancer singing the Katy Perry song "roar"(by the way it's amazing everyone needs to youtube it) and Leah reached out her hand and set it on mine. Oh yes, I sure did cry! She has never done that!
Leah wearing her purple for epilepsy awareness month. Another awesome day!
Leah doing physical therapy. She had such a cute little smile that day! She did so good at therapy this day!
My daughter Lauryn amazes me! The first week of Epilepsy awareness month she asked all her friends to wear purple on Friday. She also took a washable purple marker to school and she drew a purple ribbon on the students hands. Many kids don't know what epilepsy means. Lauryn then educates them and also tells them what an indomitable spirit means, it means someone is strong and never gives up! One day the students could dress up as superhero's and Lauryn dressed all in purple and made a sign that says "My sister is my superhero". She did all this on her own. She also is selling Leah's bracelets at school for a dollar. I am amazed at the support of junior high kids. Some kids have given $10 and $20 dollars. Lauryn wrote thank you cards to the kids who donated money to Leah. She also received a letter from a girl who expressed how much Lauryn is an example to her. I couldn't be more proud!
Here is a pic of Leah's bracelet.
Another beautiful day with Leah! This day she fell asleep in my arms! She looked so pretty and so innocent!