Tuesday, October 21, 2014

Exciting news!!!

First of all.. 
Leah is back to herself and the seizures have dramatically decreased. Thanks to my friend Jessica she has a new highchair. We love it! It works a lot better for us. I use to use her wheelchair in the kitchen and at the dinner table but now that she is in school I leave her wheelchair in the garage. I am not able to go in and out of the house with the wheelchair because I don't have a ramp...yet!

Now for the exciting news:
At school today, Leah got assessed for the Eagle eyes. It's a system for controlling the computer using your eyes. Her teacher said she rocked it out  she said she was able to track all four quadrants of the screen and she knew exactly what she was doing. WOW!!! I knew Leah has always been in there and this just confirms it. I am in tears! I can't believe there is a device that makes it possible for her to learn and communicate. She will be assessed again next week. This is just amazing!

Monday, October 20, 2014

Not a virus...

I took Leah into the doctor last Tuesday and Dr. Hornyik thought she might just have a virus. Leah continued to have a fever and vomiting. I knew it wasn't just a virus. I thought and thought about what it could be. I remembered that her urine kind of smelled funny so I called the doctor on Friday morning and I asked to bring her in to check for a bladder infection. Sure enough it was a bladder infection. Dr. Hornyik was happy that I caught that and she recommended that Leah get an antibiotic injection. Leah continued to seize Saturday but Sunday she woke up a lot better. She finally stopped seizing on Sunday. She sure slept a lot this whole weekend and today she is back to herself. Last week was exhausting! It's so hard when she's sick, I get so stressed out. She was literally seizing about every 10 to 15 minutes, luckily they were small seizures. I feel bad she suffered for eight days and we couldn't figure it out. It's hard when she can't communicate to us. It's like putting a puzzle together. I am so glad that she is now on an up road.

Wednesday, October 15, 2014

I needed this today...

Leah isn't doing well! She has been sick for about a week now. She is running a fever off and on. Fevers bring on bad seizures...countless :( I took her to the doctor and she thinks she has a virus. She has a red throat, vomiting and the runs. Poor girl! I tend to get down when she gets sick. I wish I could take all this away from her. She endures so much and it's heartbreaking. Someone from a epilepsy group I am in posted this today. I really needed to hear this today!

"Every morning, we wake up and we go about our lives. There are days when we are stopped dead in our tracks and there are days when we feel we are elevated or accelerated. There are a few things you need to know as you go to your tasks today, either with anxiety or with excitement, with pain or with ease. You are irreplaceable. You are strong. You are beautiful. You are handsome. You can do this...one step at a time. You may not always see it, but you have an army of people that love you and will support you."