Ty put this hat on Leah and he snuggles up to her cheek and says "mom take a picture". She looks like she is smiling but she was actually kind of gaging. But let's just pretend it's a smile.
It's been a good week. Leah hasn't had a seizure for four days now. YAY!!! She cried all day on Wednesday, it was a beautiful sound. We were all laughing at her crying it was a great moment. We look forward to more crying days.
We will be taking her up to PCMC on Tuesday to have her upper GI track looked at to make sure everything looks good to put in a G tube soon (feeding tube through her stomach). If everything looks good then it's just an outpatient scope procedure.
We are so thankful for all the wonderful people in our life that has helped us these past few weeks. Our new neighbors have been wonderful. They barely know us and they are bringing over countless meals and wanting to help. We love the visits, encouraging text messages and phone calls from family and friends. It means so much to us to know so many people care. I told my friend the other day that we are emotionally doing better than I ever thought. She said it's because you have so many people praying for you. Thank you again for all the prayers.
A special thanks to Chad's co-workers (They don't live in Utah) for having MANY meals sent to our home. What a wonderful surprise, you guys brought me to tears when I found this out. Thank you for your kindness and generosity.
Our parents are now spending a lot of time in our home doing dishes, moping floors, making dinners etc. I am so humbled! We are so grateful for them helping make our life a little easier. We love you!