Leah is still in the hospital. They did the blood work for the genetic testing. They did the swallow test yesterday and she was aspirating during the feeding so she can't drink a bottle. So we begin the life of a feeding tube. She has a nasal gastric tube right now (the one through her nose). We are getting trained on how to use it. It's going to take so much stress off us. We were constantly stressed when we were feeding her a bottle.
Life with a baby in the hospital is very hard. Juggling three kids at home and traveling back and forth from the hospital stinks. But some how we manage to do it, that is with the help of family and friends. Chad got on a plane again this morning. I know it was so hard for him to leave us with Leah in the hospital. He is an amazing husband and dad. He won't let me sleep up at the hospital. He has stayed every night with Leah. Her monitors go off constantly and the nurses come in the room constantly it's so hard to sleep. I think it's caught up with him. I think he is going to enjoy catching up on his sleep at his hotel. The reason Leah is still in the hospital is because they are monitoring her while she starts on the diet. So far so good. We hope to bring her home tomorrow.
Here is Leah in ICU:
A friend sent me this quote, I really like it:
"God didn't promise days without pain, laughter without sorrow, or sun without rain, but He did promise strength for the day, comfort for the tears, and light for the way. If God brings you to it, He will bring you through it."