A little update on Leah. She was experiencing a lot of seizures last week, we are talking a seizure an hour. She still maintained her ability to be aware and move a lot because of the dopamine but the seizures needed to slow down. We spoke to Dr. Swoboda, she was disappointed that the dopamine caused her to have so many seizures so she backed off the dosage a bit. It helped. Her seizures slowed down but now what? We want to continue the dopamine so now we are going into Dr. Filloux office this Thursday to talk about the seizures and what is the next option. By the way, Dr. Swoboda told us she fully supports us to try CBD oil. Yay!! It's so nice to have all of our doctors support.
We found out this past week that Leah loves balloons, what two year old doesn't love balloons! I tied the balloon on her wrist really low and her eyes followed that balloon for hours. She would lift up her arm and try and touch the balloon. It was so fun to watch. Here's a pic:
Leah has finally gone back to play group at Kauri Sue Hamilton special needs school. It was bear day. All the activities revolved around teddy bears. Leah got to smell scented play dough and hold it in her hand. She pushed hard down on the play dough when it was in her hand. They do a lot of sensory activities. The therapist made a bear cave for the kids to go in (it was so cute). We read bear stories in the cave (pic with Ty on the bean bag). At the end the group goes to a sensory room to play. Leah loved the little tramp. We bounced her and she always in some way told us she wanted more. She would move her legs to tell us. I love that we are establishing some kind of communication with her. She also laid in the balls with Tyler and went down the slide. Through her eyes we could tell she loved every minute of it.
We went to Spaghetti factory for Chad's moms bday and a guy made her a cute angel princess balloon.
Sometimes a door in her brain opens for a minute. Leah gave us smiles today! Best day ever!