Friday, July 27, 2012
We finally got in to see Dr. Fillox (pronounced Few), he is the head doctor in pediatric neurology up at Primary's. He saw Leah up at Primary's when she started the ketogenic diet and we really liked him. He was happy with Leah's progress. He was shocked that the diet stopped Leah's seizures (it is very rare for the diet to stop seizures). We know that we were led to the diet and we are grateful everyday that God continues to take care of Leah and our family. Anyway...back to the doctors appointment. He is ordering another MRI and EEG for Leah, he wants to make sure everything looks good. He doesn't feel she has any disease or disorder associated with seizures. He feels if she did she would be seizing still and we basically have already checked for almost all diseases associated with seizures. He feels there's a 25% chance she may have a genetic disease not associated with seizures. He is going to do some research and see if there's any other diseases and disorders to check for, again not related to seizures, but maybe more the nervous system. Chad told him "Doc I really need you to think outside the box". Dr. Filloux agreed that Leah is a very rare case and that he will do some studying and get back to us. This is what we need...this is what we've been wanting and waiting for...a doctor that cares, wants to help and is willing to study and "think outside the box". We went through many many neurologist to find one, one single person to help us. Good doctors are very very hard to find. Anyone who is reading this PLEASE don't settle on the first doctor you see, always always get second and third opinion's. I know I've said that before but I can't stress enough how important that is.
Posted by April at 4:54 PM