Preschool

Believe it or not Leah will be three in August! Crazy! It feels like she is still my baby. We are very nervous for this new step but it's preschool time in the Fall. We have two places she can go. One is the school for the Deaf and Blind (Leah has cortical vision which means sometimes her eyes and brain don't communicate with each other) and the other is the Jordan School District special needs preschool. Today we visited the Deaf and Blind school. It went well. We like that the classroom is very small (four kids starting in the Fall). We like that there is two or three aids and a nurse right there in the classroom. The class will gradually get bigger as the year goes but not much bigger. We really liked the nurse and the teacher. The class is four days a week 9:30-2:00. We can choose to only go two or three days. A van picks her up and takes her to the school up in Milcreek (I know that's far away). Then we have the Jordan School District preschool which is only a couple miles away and it's a half day two days a week. There are around 15 students with two aids and the teacher with no nurse on site. There are also model children (main stream children in class). We will visit this school in two weeks. We, of course are very nervous to send her off but I know she will love it. Her eyes light up when we go to the special needs school for play time on Fridays. Even though she can't talk or walk or even hold her head up that little girl is in there and I know she will love watching all the kids and get a chance in her own way to color, play with play dough and learn. I think we will know in our hearts what preschool will be right for her.

Aware of Angels

We are so excited to announce that Leah will be getting full genome mapping done. Aware of Angels is an organization that was put together by our friend Season. She is amazing. We met her and her family when we were lobbying to get the oil legalized in Utah. Her daughter Asia has a chromosome disorder and she also suffers from seizures. Season has started this foundation to help diagnose children with rare disorders. She has got doctors and labs to donate their services to help these children. Leah is now one of them and one of the first to hopefully be diagnosed through the genome mapping. We are so excited and so grateful to be a part of this. What a blessing in our lives! We have met with the doctors who are donating their services and they are just completely amazing. They are sending a nurse to come to our home to take my blood, Chad's blood and Leah's blood. They are also swabbing the cheeks of our other kids. They are very anxious to find what might be going on with Leah. We hope and pray that they will find what is wrong with Leah. This is our last resort for Leah. Our insurance denied this testing and we appealed it and they of course denied it again so we are so grateful to have this donated to us. I just feel like so many wonderful things are happening in Leah's life and we are finally going down a great path for her. She deserves it!

Chad and Leah are in a video on a website called Elenity. They are featuring Aware of Angels. 50% of all profits are donated to Aware of Angels. Check out the video here: www.elenity.com
Just click on read more and then click on the video. It's a tear jerker!!!

Check out Aware of Angels website:
awareofangels.org