Tuesday, December 24, 2013

Merry Christmas!

The reason I haven't posted for the last two weeks is because Leah has had a bad couple of weeks. She got a cold. When seizure kids get sick their seizures intensify and the amount of seizures doubles or triples. Basically Leah didn't come out of seizures for two weeks. She got double the meds and even rescue meds and nothing worked to stop them. She was either seizing, sleeping or majorly drugged. Bad seizures = Bad vomiting. We held our breath every morning when we would go get her because almost every morning her head was in a lake of vomit. I don't mean to sound gross but this is our realty every day. Our worst fear is to have her pass away from aspirating on her own vomit.  It's so emotionally and physically exhausting!

Good news...I got the best Christmas present! When I went to get her this morning she was in her crib just completely bright eyed and alert. She had only two seizures yesterday so that makes for a wonderful day today. Her cold is gone and she looks awesome!!!

Leah will be in a photo shoot with the Salt Lake Tribune on Friday. They are doing a big article on all the kids fighting for the oil. I will post the article.

We continue the HOPE for Leah!

I want to wish you all a very Merry Christmas! Thank you for all your love and support for her and our family!

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