Here is an update on Leah:
At the end of November, Leah started seizing again. She is growing her molars. 2 are here and 2 are getting close. The seizures lasted until the bottom 2 teeth broke through, then they stopped. During this time she had many moments of not eating. She is so skinny and frail, it really scares me. Sometimes it has took us close to an hour to feed her, and then we would start the process all over again two hours later. This would take up most of our day (the unpacking the house has been a struggle). In the meantime, Leah's therapist came to do some work with her, She noticed something that we had noticed in the past. Her left wrist was swollen and had a strange curve to it. She suggested that we get it looked at. We took her to get an Xray. What they found made us feel sad for her. She had a broken arm. They suggested that we take her to an Orthopedic doctor. We were able to see a hand specialist. While we were there, we asked him to Xray both wrists. They found that they were both broken. Because of that, they did a whole body scan and found that she had a broken ankle too. It is very sad, because Leah has had no trauma nor does she even really move. Because of this, we will be going to see an endocrinologist to check out some metabolic disorders that affect bones. The breaks have already healed so they aren't going to do anything about it. She was such a strong fighter during it all.
Today is the 1 year anniversary of when it all began. It's been a very emotional day for me. It has been a long year and we still have more questions than answers. We have become different people than we once were, due to this little angel. Many nights throughout this year I have pleaded to God to heal this little girl and to please bring her back to us. It took a year for me to learn to change my prayers. I now pray that she can be strong and we can be strong enough to handle this life challenge. The transformation that happens when we choose this is nothing but beautiful. I know he is there and I know he listens to me. His tender mercies let me know he is there and that he loves me and my family and wants us to continually grow and develop into the people we are today and the people we one day will be. The comfort he gives me and the many miracles we see daily in our lives tells me he is always there for us. His help is there, we just have to go to him and let him mold and shape our lives.
So here's to 2013, it's going to be a beautiful year!