More Seizures...

Last week was a really hard week for Leah. She has four new teeth coming in so therefore she has fevers which result in seizures. The worst day was last wednesday she had ten seizures. She would seize fall asleep and wake up only in another seizure. Really scary....She finally started getting better towards the evening. Chad and I had tickets to the concert 311 and we really were nervous to leave her but we decided she was okay with grandma and we really needed a night out. We had a great time. We went with one of Chad's friends from work and his wife. We were right by the stage dancing all night. It was like we were in college again. It was the best therapy for us!

The couple we were with that night also have a special needs baby. She only has a half a heart. She is ten months old and has had many surgeries. She is doing well but she won't have a long life, she can pass away at any moment. Her mom and I had wonderful conversations about being parents of these special girls. We both have experienced many of the same emotions. It's been a hard road for both of us and it was nice to know someone else knows exactly what your going through.

Two seizures!

I needed this today! Leah had two seizures today! The pain of watching her seize is unbearable at times. I truly don't know how I made it through four months of daily seizures. It was through prayer and the prayers of many others that God gave me strength every moment of every day. I question all of this heart ache daily...why me? why her? why seizures? Why couldn't it happen to me and not her? It's been a sad day, it's especially hard on my kids. They say to me "mom, I thought her seizures were gone! Why is she seizing again and why can't she be normal". It breaks my heart to see them sad and hurt. They love their sister and all they wanted was for her to play with them. I have no answers for them. All I can say to them is stay strong and never loose hope. Yes...we had many dreams for this baby girl but God has a better plan for her.

Now I can!

Leah will be starting a new physical therapy program called "Now I can" on September 17th. It is the best physical therapy in the state of  Utah. Dr. Humphery's told us about this program, he feels Leah needs intense physical therapy. Leah still has a floppy neck and she needs to develop coordination.  This program is designed specifically for children with neurological problems. The program is in Provo and it's five days a week, four hours a day for four weeks...very intense. Our life will be put on hold for a month...but we can't wait!

We keep receiving many blessings in our lives. We found out the program cost $6,000, we were very ready to pay it. We are building a house (I know we are crazy and we might be putting fuel on fire but we need a bigger house and interest rates are awesome. It might not be the best time for us but oh well here we go!) so anyway we were ready to put the new house on hold to pay for this therapy. We soon found out our insurance covers the program 100% we just have to pay co-payments. This is rare to have insurance cover this much therapy. We are so incredibly grateful!

Happy 1st Birthday!

August 8th was Leah's first birthday. We sang happy birthday to her many times that day and gave her apple juice for the first time. She took a sip and looked at us like "what in the world is this"...after a couple sips she began to like it. We didn't do the usual first birthday party full of presents and baby diving into a cake. But...one day we will.

One thing that happened that day was that Leah giggled...and it wasn't us trying to make her laugh. She was looking to the side and smiled and belly giggled to no one. Well, it was someone. An angel probably visited her on her birthday and must of made a funny face!

She found her voice!

Here is a video of Leah talking. She talks to us and talks to herself when she is in bed. It's the best sound ever.