On Friday Febuary 27th we went up to the Utah State Capital to celebrate Rare disease day. It turned out great. There were many speakers who spoke on living with a rare disease and parents who have a child with a rare disease. People of the Legislature spoke and some medical professionals. My sweet friend Season spoke about Aware of Angels. She did such a great job! The Governor declared a Utah Rare Disease day, that was also very neat. Chad and I attended a conference that next day at the U of U for Rare Disease day. It was very good, we learned a lot. We are so grateful to know so many incredible families who are fighting such a hard fight with a child with a rare disease.