Leah's new FB page.

We just started a public Facebook page for Leah. We want to help raise awareness for SCN8A. If you're interested in following you can click on the link below and like her page. Thank you for everyones love and support.

https://www.facebook.com/HopeforLeah?fref=ts

The little things.

It's the little things that mean so much- it's getting eye contact when I hold her...it's the moments I talk to her and she opens her mouth and tries to make little noises...it's when I rock her and sing to her and I see a special look in her eyes.

Playing with service dogs.

Leah with the service dogs at school. She gave big smiles!

Spending some time at Shriner's hospital.

Hanging out at Shriner's hospital today. Leah got fitted for her new brace to help with her scoliosis- we picked one with butterflies smile emoticon They also made adjustments on her wheelchair. I just love this place!